Tag Archives: support group

Chairman of Breathe Easy support group battles with COPD

Working with the British Lung Foundation to support COPD sufferers

Eric Compton

Eric Compton

Every year Public Health England runs Stoptober, an initiative that challenges smokers to quit for 28 days of the month. People who make it are then five times more likely to quit for good.

We all know that smoking has very harmful effects, causing numerous types of cancer and damaging the heart, brain, arteries, skin and lungs. But some people understand the effects of smoking more than most.

One such person is Eric Compton, who has Chronic Obstructive Pulmonary Disease or COPD. Since being diagnosed, Eric has started and is now chairman of a Breathe Easy support group in his local area of Portsmouth. He also does a lot of work with the British Lung Foundation (BLF) to raise awareness of COPD, how to manage it and the negative health affects smoking has on the lungs. Read more

Marfan Syndrome: A Rare Connective Tissue Disorder

A Rare Inherited Disorder

Marfan logoMarfan syndrome is a fairly rare genetic disorder that effects the body’s connective tissues, whose purpose is to maintain the structure of the body and support internal organs. Although a rare condition itself, affecting about 1 in 3,000 people, it’s one of the most common connective tissue disorders. Marfan syndrome is hereditary, with about 75% of cases being passed on from one parent and a child has a 50% chance of receiving it. Some people however, do not inherit it: spontaneous mutation is when the individual’s cells mutate on their own.

What Is Marfan Syndrome?

Connective tissue is found through-out the body and is made up of a range of fibres which gives the tissues its elasticity. A protein called fibrillin is part of these elastic fibres, but Marfan syndrome creates an abnormal or deficient version which makes the fibres unusually stretchy and weak. It can make some bones grow abnormally long and be more brittle than usual, while stretch marks are and joint pain are also common occurrences. Read more